A Day Measured in Fares

Please click the photo above to play the daily videoSome days announce their length early, and this was one of them. It began, as the busier ones tend to, with rounds — the steady morning ritual of working through the ward, that unhurried procession of names and notes that grounds a day before it has a chance to run away. I moved through it knowing the rest of the morning had other places to be.

From there the city took over. A Grab across town to Hospital Ampang, that particular Klang Valley experience of watching your estimated arrival time negotiate quietly with the traffic and losing. The occasion was the launch of the new CPG — one of those events that exists somewhere between ceremony and admin, equal parts polite applause and genuine usefulness. There's a satisfaction in seeing one of these things finally put down on paper and sent out into the world; a great deal of patient work goes into a document most people will only ever skim.

Lunch followed, and then I dropped by Jerome's office — the kind of unscheduled detour that turns a working day into something more companionable. A conversation here, a familiar face there, the small social mortar that holds the professional bricks together.

And then the long crawl back to SJMC, which is where the day presented its bill in the most literal sense. Sixty ringgit. I sat in the back doing the arithmetic of distance against fare and arrived only at a quiet resignation. Surge pricing has a way of finding you precisely when the city is at its most congested and you are at your least patient. I paid it, of course. One always does. But I noted it, the way you note a small injustice you've no intention of contesting.

Home, mercifully, came early — early enough for a proper sit-down dinner rather than the rushed, standing-over-the-counter affair that long days usually produce. There is a particular pleasure in an early dinner after a day spent ricocheting across the city: the food unhurried, the chair welcome, the sense of the day finally consenting to slow down.

The evening, though, still had one thing left to offer. I settled in to listen to a talk by Elias Jabbour, over from MD Anderson, with Jerome in the chair — the same Jerome whose office I'd lingered in hours earlier, now presiding from a stage. Jabbour is the sort of speaker who makes a complicated thing sound almost conversational, and there's a quiet luxury in being able to take it in from the comfort of home rather than a conference hall's unforgiving chairs. I listened with the contented attention of a man who has done his travelling for the day and intends to do no more of it.

A long day, then, and a crisscrossed one — measured out in fares and finished, fittingly, with someone else doing the talking. I was happy enough to sit and absorb, the city's traffic safely on the other side of the window.

Afternoon at Hospital Ampang

Often, I would be at Hospital Ampang to either deliver talks or attend a meeting. Today was the first time that I was there as a visitor. My brother-in-law developed an abscess which needing operating and he was admitted via the Casualty yesterday. Anita was with him all day sorting it out, while I was on call at Subang.

I must say that the experience was much better than she expected and my brother was given great care.

Finally, after my morning rounds, I went straight across town to Ampang, joined by Anita. It was about time that my brother was wheeled into the operation room. He was nervous.

Then, one of the House Officer recognised me. She said I used to teach her at UM. Always nice to know.

My brother-in-law waiting for his brotherMy brother was just being wheeled in. I had to go to the lobby as the phone signal at the operation theatre waiting room was a bit suspect. Being post-call, I was sure my phone would be ringing.

The operation should take under a couple of hours. My father and brother-in-law was also on the way in, and I would wait to fetch them from the lobby.

I still needed some rest after the busy night last night. I would probably be sleeping in the bench at the waiting area before long.

I must say that our experience thus far as a patient and family members had been great. Hopefully it would continue to stay as so. ‎

Talk in Ampang

Yesterday afternoon, I was invited by my colleague from Hospital Ampang to participate in a public forum on Multiple Myeloma. Apart from myself, they invites a Nurse from Dana-Faber Cancer Center in Boston to address the questions from the partiipant about living and coping with the disease.

The session started out with a short talk on myeloma by yours truly all in Malay. We then took question from the public ad that went on for a good half hour. At the end we discussed about the need for a patient support group that were pretty common abroad. It looked that there were some interested party in there. Hopefully something will come out of it similar to the MaxFamily for CML.

We highlighted that part of the reason why cancer parietal support group were not very strongly supported here was the fact there there was stigma attached to the diagnosis of cancer in out society. Patient once labelled as having cancer often felt shame and wondered if it was punishment from God. Worst so, this view was reinforced by the people around them. These people ended up retreating into a shell and suffered by themselves.

I was pretty certain that part of challenge would be to chance the patients perception of their disease, overcome the stigma, empower them and make them confident. Only after the inner battle were address, they can start changing te public perception of their predicament. The problem also held true for other non-cancer conditions such as lupus and multiple sclerosis. Even diabetes support groups locally struggled atthe beginning. I guess we Malaysian still have perception that having any disease was a direct consequence of punishment from God, be it cancer, lupus, diabetes. Even my Mum-in-law once said that when she was bringing up her children re my wife, they never had fever until they attended school. Since out children were both asthmatics, bearing in mind that Irfan was just discharged from hospital, the infections that they regularly picked up were due to us not looking after them properly, and even due to us 'tak buat baik' to other people. I realised that those statements should be taken with a pinch of salt, the point I was making was generally we Malaysian were wary to people having illness and all illness must always have a reason behind them.

Frustrating I know but those were one of main hurdles we had to jump in order to make any support group successful. Over the years in Malaysia, I was involved at helping up the beginning of support group for Immune Thrombocytopenic Purpura (ITP), Chronic Myeloid Leukaemia (CML), lymphoma and now myeloma. So far, only the CML group really took off. It helps when most of the members were youg and relatively fit and vocal. I would be happy if the myeloma was half as successful as their CML counterparts.